Welcome to AIS-DSD Support Group for Women and Families.
If you are finding our site for the first time, please know that you are not alone. Our network consists of hundreds of women and families whose lives have been touched by Androgen Insensitivity Syndrome (AIS) and Disorders of Sex Development (DSD). There are dozens of diagnoses included in the DSD umbrella. The Adult Women’s Support Group includes a variety of these disorders, while the Parent Group includes any family who has a male or female child with any DSD. We are also able to provide men who have a DSD with a referral to a newly formed support group.
We can provide you with opportunities to join a support group, receive newsletters, and resources. We partner with many professionals who can assist you in requesting medical records, and find medical and psychological services. Most importantly, we provide members with the opportunity to connect confidentially with others like themselves. AIS-DSD wishes to provide all members with a safe place to embrace the uniqueness and experiences we share.
We have many members emerging to educate the public about DSDs or their own experience of living with a DSD. Please check out our new informational brochure under the Advocacy/Outreach tab.
Each year we hold an annual conference. It is an amazing experience that is often life changing and life affirming. We encourage you to contact us soon as the conference will occur in early June in the Midwest.
We are glad you found us. If you would like more information or have questions, please go to the "contact us" page.
We welcome your tax-deductible donation. The generosity of our donors has made it possible for us to assist many individuals and families who would otherwise be unable to attend our annual conference this July.