- AISSG UK
The AISSG-USA (now called AIS-DSD Support Group for Women and Families) was founded in 1995. However, considerable pioneering work in creating a network of support was done by a group of dedicated women in the United Kingdom. Their web site remains the largest repository of information on Androgen Insensitivity.
- Advocates for Informed Choice (AIC)
AIC develops and uses legal strategies to protect the civil rights of children born with intersex conditions or DSDs. AIC can answer parents questions about their children's health care and privacy rights, school accommodation, and other legal issues. AIC can also help parents advocate effectively in the doctor's office by providing the right information and questions to ask.
- National Organization for Rare Disorders (NORD)
NORD's mission is to help people with rare “orphan” diseases and assist the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research and service.
- Genetic Alliance
Genetic Alliance uses the expertise of the genetics community to provide advocacy to groups, schools, and businesses who collaborate to improve human health for individuals and families living with genetic conditions.
- Accord Alliance
A group dedicated to DSDs/intersex, with a goal to promote a comprehensive and integrated approach to care that enhances the health and well-being of affected people and families. They foster collaboration, education and advocacy.
- Intersex Society of North America (ISNA)
ISNA (now disbanded) was an organization devoted to systemic change to end shame, secrecy, and unwanted genital surgeries for people born with an anatomy that someone decided is not standard for male or female. The web site remains as a useful reference.
- DSD Discourse
Drawing on a wealth of professional, personal and practical experience, we are uniquely positioned to offer training and resources, both in our respective communities and on a national level. Partnering with your organization, we can provide a foundation of knowledge which fosters a supportive working, learning and service environment, benefiting everyone, including those living with a DSD.
In addition to the above organizations, the AIS-DSD Board Members have access to a medical advisory board that we can refer more complicated questions to for answers or links to others who can help.
Dr. Charmian Quigley
One of our strongest allies in the medical arena, has been Dr. Charmian Quigley who has been with us since the formation of the Support Group back in 1995. Dr. Quigley (shown at right) donates considerable time and resources to our group and each summer at the annual meeting leads a number of sessions that help us learn of the latest information on DSD. If you have a question for Dr. Quigley, you can post it via the parents' support group e-mail circle that she is a part of already, or you may write the AIS-DSD
board at firstname.lastname@example.org